Here's the most recent update from Jane (Shasta)
Hey Guys---Read all the replies since the 7th---wow, didn't know I'd been away so long this time--THANK YOU for giving me the positive and encouraging feedback. That always helps--more than you can imagine unless you have had that experience, which I know that many of you have had and you know just how it helps! If not...good for you, but you still realize the benefits of the love and thoughts and energy and prayers and I love all of you for that!!
My radiation treatments (10 of them) were over on the 18th of May--5 days each of 2 weeks, a trip to Memphis-my drivers are appreciated so much. The tech said that this stereotactic radiosurgery treatment continues in the body for 5-7 weeks so they will not try to scan and see the results until they can get the full effect at the end of that time.
On the 19th, which was on Saturday, the good Lord allowed me to be well enough to attend Meg's beautiful wedding. I was seated by her grandmother...so sweet. I am really her cousin but we are so close. Shawn is like my sister so I have actually been an aunt to Meg. Helped raise her and I was so afraid I'd have to miss her wedding. She, on the other hand, did not have doubts. Good kiddo. The wedding was very unique---two music majors planning and decorating. It was fun too. The reception...same. Very lovely.
Sunday...the 20th. I was able to attend church services both AM and PM.
Monday...A lady from church drove me to the school for an end of the year breakfast buffet and I brought fruit dip and fruit...strawberries, apples, and red seedless grapes. That was a fun breakfast and visit.
The librarian acted as my "nurse" and made sure I had what I needed and stuck right by me. She'd also offered her home--as did others--in case I had to lie down and rest, but I made it. YaY!
Later, well...right at 9:15 right after breakfast--we had a LONNNG professional development session and it was about parental involvement and also rigor vs. difficulty. It went to about 1:15. UGH. No lunch break.
I started to fade about 30 minutes earlier and I got a little frustrated with it all. But then, we finished and the librarian ran and got us some veggies---mashed potatoes, corn, beans, and rolls at KFC and we scarfed that down which...not the best way to eat, but....
at 2:00 there was a ceremony for the elementary principal, so we all drove over there and did that. It was time to leave then. Sherry, the librarian, drove me to one point and Shawn picked me up. That was a day!
I am supposed to lie down every 2 hours according to one of my nurses...didn't make that goal on the 21st.
On the 22nd, I had a urologist appt. at UT at 8:30 in the morning!!!! Shawn and I have been getting up really early. I had a UTI, so he did not get to check my progress, but I have another appt.
The nurse called and after I'd finished my meds, she said that my UTI was a kind that was resistant to the meds they'd given me. She callled in another one and MAN...I am peeing so much I have to wear DEPENDS now for awhile. It just pours. LOL. Which is good, but not convenient. If I'm getting well, I can tolerate whatever. Since the fourth chemo, I have been battling that, and burned and split fingers that all but my thumbs have lost the top half of the nail, and also very severe edema in my lower legs and my feet which I have never had.
Friday, the 25th I could not take chemo 5. My some kind of blood level was too low. I had to also go and get an ultrasound to see if I had a blood clot in my legs, but I didn't, so they just prescribed some compression hose for that. That weekend 26-27...was good. I felt well and got a lot of errands done on my own. Also got to go to church again.
Tuesday, the 2....OMYGOODNESS. forget the dates. I do not have them right at all. The 25th hadn't even happened yet. LOL.
Well...this past Tuesday I had a blood transfusion all day at Methodist University again. It was not hard. Shawn went to Huey's and got our lunch. We were there from 8:30-5:00 getting crossed and typed, getting the 2 bags of blood platelets brought over from the blood bank and then getting the drips. We laid around and read, ate, and watched a little TV. LOL. Not a bad day in the hospital.
And today which is Friday the 25th, I was good for chemo 5. Another long day. Shawn and I met with another one of my friends/drivers and we ate dinner at a Mexican restaurant in West Memphis and we went to a couple of stores and then to the other lady's home so that Shawn could see it. Got home late. I usually feel very good on the weekend of chemo and then some side effect or another shows up on Monday or Tuesday. SO. That is what has gone on to an extent from the 7th. Even tho I got the dates mixed up. (Not a rare thing....lol)
Not sure when my next appt is....the urologist made one and then I know I will have or try to have another chemo in 3 weeks.
When next week starts, hopefully I will be able---I am going to work on learning to use an Ipad. The kids and the teachers are going to have to have all text books on it and all lesson plans, etc. No more books in book bags. They have been working on it at school meetings, so Sherry is going to tutor me on what they've done so far. She is good and very patient, so I am glad that she is willing.
I also have to work on professional development hours this summer. I will try to start that in the next few weeks as well.
NOW. All caught up. LOL.
Hope you guys have some summer plans that you can tell me about and that you are looking forward to. Let me know what is new in your lives. I should have plenty of time to read in the next few weeks.
Asking you to keep up the prayers and thoughts and positive energy. You encourage me so much and I appreciate you!
Take care. I am off to bed for awhile. TTYL!!! ♥♥♥♥ LOVE AND HUGS! Not gonna edit right now, so I hope you can decipher. LOL!!