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On Caregiving
Front-Ranger:
That's a good idea, Chuck.
My good idea was to arrange for the entire family to have a gathering on the patio of mom's nursing home. I made some fruit salad and picked up a couple of rotisserie chickens. Then, because it is Mom's great granddaughter's 2nd birthday in a few days, I made a birthday cake.
The attendants got mom out of bed, dressed her and combed her hair, which annoyed her. I then wheeled her out onto the patio. She gradually gained more and more consciousness while we ate and seemed to like the sound of the children playing on the lawn. We opened a few presents, had birthday cake and then, for the grand finale, my son and daughter performed a concert of gospel songs for her. She really perked up at that and even opened and focused her eyes. She tried to clap at the end of all but the last song. I wheeled her back to her room at about 7 pm and the attendants were all saying wonderful things about our little gathering. I think they are going to be more gentle and compassionate with her now that they know she has a loving family.
I'm home and the cat is eating from a rotisserie chicken carcass. She's happy too. I've made all the loved ones in my life happy so I'm happy.
serious crayons:
--- Quote from: Front-Ranger on September 19, 2017, 10:00:22 pm ---That's a good idea, Chuck.
My good idea was to arrange for the entire family to have a gathering on the patio of mom's nursing home. I made some fruit salad and picked up a couple of rotisserie chickens. Then, because it is Mom's great granddaughter's 2nd birthday in a few days, I made a birthday cake.
The attendants got mom out of bed, dressed her and combed her hair, which annoyed her. I then wheeled her out onto the patio. She gradually gained more and more consciousness while we ate and seemed to like the sound of the children playing on the lawn.
--- End quote ---
That sounds really nice. What a great idea. :D
--- Quote ---We opened a few presents, had birthday cake and then, for the grand finale, my son and daughter performed a concert of gospel songs for her.
--- End quote ---
Wow, it's very impressive that they're able to do that!
--- Quote ---the attendants were all saying wonderful things about our little gathering. I think they are going to be more gentle and compassionate with her now that they know she has a loving family.
--- End quote ---
I hope they are nice to your mom but it would be really sad if that's their criterion. If anything, it should be the other way around. (Not that they should be meaner now, but that they should be the most gentle and compassionate with those who don't have loved ones.)
--- Quote ---I'm home and the cat is eating from a rotisserie chicken carcass. She's happy too. I've made all the loved ones in my life happy so I'm happy.
--- End quote ---
Then we're happy for you! :D
CellarDweller:
--- Quote from: Front-Ranger on September 19, 2017, 10:00:22 pm ---I'm home and the cat is eating from a rotisserie chicken carcass. She's happy too. I've made all the loved ones in my life happy so I'm happy.
--- End quote ---
Job well done, Lee!
Front-Ranger:
One of the biggest disappointments to me as a caregiver was hospice. So, here's a little information about them.
Hospices are not delivering on their promises: http://time.com/4995043/no-one-is-coming-investigation-reveals-hospices-abandon-patients-at-deaths-door/?utm_source=time.com&utm_medium=email&utm_campaign=the-brief&utm_content=2017102511am&xid=newsletter-brief
The 4 levels of care hospices must provide are “routine care, which is by far the most common; respite care to give family caregivers a break for short time periods; and two levels of so-called "crisis care," continuous care and general inpatient care, when patients suffer acutely. But 21% of hospices, which together served over 84,000 patients, failed to provide either form of crisis care in 2015”
https://hospicefoundation.org/End-of-Life-Support-and-Resources/Coping-with-terminal-illness/how-to-choose/questions-to-ask
CellarDweller:
I'm not surprised that in our country, hospice care is lacking.
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